A creative arts and fashion show event in aid of the rare condition Angelman Syndrome will commence at 7pm on the 31st of January, at Hackney Attic and Bar. The event is in aid of ASSERT, the Angelman Syndrome Support Education and Research Trust.
This innovative event aims to put on an exhibit for a vibrant audience of consumers, fashionistas and the press, in order to raise awareness of this unknown condition. Angelman Syndrome is an extremely rare condition that is characterised by laughter, energetic movement, hugs and mutual a fascination of all things shiny, including water.
Those with the condition will typically have profound special needs, some physical disability, a significant lack of verbal skills, sleep disturbance, epilepsy and other possible complications. The Syndrome does not reduce life expectancy but those with the condition will always need constant care.
The founder of this event, Joanna Marcella, has displayed her devotion to the cause whilst revealing the charitable work of Colin Farrell. She stated, “I’m encouraged by Colin Farrell’s mission to raise more awareness about Angelman Syndrome. As a celebrity he is able to catch the attention of the media with the story of his own son. I am extremely passionate about this cause and want to do all I can to raise awareness for angels like my grandson”.